Chronic Pain Ireland (CPI) is proud to have partnered and represented the patient voice along with the UK based Charity Burning Nights on this research initiative led by the UCD School of Public Health, Physiotherapy and Sports Science, University College Dublin. This collaborative research resulted in the development of the OptiMeth-CRPS Framework –an initiative focused on improving the quality of future clinical trials involving people living with Complex Regional Pain Syndrome (CRPS).
The OptiMeth-CRPS project represents a significant step forward in identifying consistent, evidence-based approaches to CRPS care and in promoting more equitable treatment pathways across Europe. This research is the result of extensive collaboration between patients, clinicians, and researchers, recognising that meaningful change in chronic pain care must be co-designed with those with lived experience. Chronic Pain Ireland is fully committed to continuing our involvement in research and policy development that aims to improve quality of life and clinical outcomes for people living with CRPS and other chronic pain conditions.
About the OptiMeth-CRPS Framework
The OptiMeth-CRPS Framework provides a nine-step approach designed to support healthcare professionals in:
ï‚· Recognising and diagnosing CRPS early and accurately
ï‚· Standardising assessment methods across healthcare systems
ï‚· Implementing coordinated, multidisciplinary care
ï‚· Promoting patient-centred rehabilitation and self-management strategies
ï‚· Ensuring equitable access to appropriate treatment and psychological support
These steps form a roadmap for improving the quality of trials so that they produce better quality evidence underlying treatments for CRPS.
the OptiMeth-CRPS framework
The OptiMeth-CRPS network welcomes the opportunity to speak on any aspect of the framework and its recommendations and to offer support and collaboration for any initiatives that might further implement the framework.
The OptiMeth-CRPS network project was funded by the Health Research Board under the ERA-NET Neuron Co-Fund Scheme (Proposal ID NEURON_NW-008).
Why does this type of research matter?
Many people with CRPS experience delayed diagnosis, inconsistent care, or limited access to specialist treatment. The OptiMeth-CRPS framework seeks to close these gaps by providing practical, research-driven guidance that can be adopted at clinical and policy levels.
Chronic Pain Ireland’s involvement reflects our ongoing commitment to ensuring that the voice of patients in Ireland is represented in national and international research. We believe that collaboration between researchers, clinicians, and people with lived experience is key to driving meaningful change.
Get Involved
If you are interested in learning more about this research or in contributing to future patient-partnered projects:
ï‚· Read more about the OptiMeth-CRPS Framework:
Smart et al 2025 OptiMeth-CRPS A Methodological Framework for Optimising Clinical Trial Methods for Complex Regional Pain Syndrome (CRPS) 240825
ï‚· Get in contact with the Project Co-ordinator, Dr Keith Smart, email: k.smart@ucd.ie.
ï‚· Sign up to CPI’s monthly eZine to stay informed about new opportunities for involvement in patient and public involvement (PPI) initiatives
