Name: Recognizing and Coping with Stigma: A silent enemy
Start: 2023-03-16T19:00:00+00:00
End: 2023-03-16T19:45:00+00:00

Trigeminal Neuralgia Ireland

Trigeminal Neuralgia Ireland hold support group meetings approx. 4 times a year

Tame The Pain – Chronic Pain Therapies

Patient Education Website for patients suffering from chronic pain regarding alternative treatment options.

Spinal Injuries Ireland

SII is the support and representative organisation for people with a spinal cord injury and their families throughout Ireland. Based in the grounds of the National Rehabilitation Hospital in Dun Laoghaire, Spinal Injuries Ireland supports over 9,000 people nationwide, comprising those who have sustained a spinal injury, their spouses and families. We focus on dealing with the many vocational, social and practical issues facing people and support them from onset of injury to living in the community though our nationwide service of outreach liaison officers. www.spinalinjuries.ie

Pain Concern UK

Pain Concern

Unit 1-3, 62-66 Newcraighall Road, Fort Kinnaird, Edinburgh, EH15 3HS

Tel: 0131 669 5951 Helpline: 0300 123 0789

Email: [email protected]

Web: painconcern.org.uk, facebook.com/painconcern

Twitter: @PainConcern

Pain Concern provide information and support to people with pain and those who care for them, whether family, friends or healthcare professionals. We aim to raise awareness about pain and improve the provision of pain management services, through our policy and campaigning work. Our Airing Pain radio show is a series of audio podcasts featuring the experiences of those managing their everyday pain, and interviews with top, internationally- recognised experts. Our magazine Pain Matters contains news, features and comment on topics including self-management techniques, research into pain treatments, and personal experiences of living with pain. It is available in print and electronic form. We run a helpline staffed by volunteers, who provide information, support, or just a listening ear to people wanting to talk about their own pain or that of a family member or friend, and an online community on HealthUnlocked which provides members with a forum to share experiences. A free information pack on how to manage pain is available.

Migraine Trust UK

Key areas of work include:

A free and confidential Information and Enquiry Service, which responds to questions about migraine and disabling headache.
An Advocacy Service that aims to help people understand and assert their rights when facing discrimination at work or in education or healthcare settings.
Organising regular ‘Managing Your Migraine’ events throughout the UK.
Funding vital research to increase our understanding of migraine, and ultimately seek a cure.

Founded in 1965, The Migraine Trust is proud of its expertise and reputation, and its commitment to making good quality, evidence based information about migraine as accessible as possible. Visit www.migrainetrust.org for a wealth of information about migraine, details of upcoming events and contact details.The Migraine Trust is a registered charity in England and Wales (1081300) and Scotland (SC042911)

Migraine Association of Ireland

“The Migraine Association of Ireland (MAI) exists to provide information, support and reassurance to migraine sufferers and their families while seeking further research, better treatments and increased public awareness of the condition.

The Association runs a responsive and confidential helpline and produces information leaflets on all aspects of migraine. In addition to organising training events and information campaigns, the MAI gives workplace presentations to employers and employees and hosts public information evenings across Ireland. The MAI also facilitates health professional training through outreach programmes which target hospital based doctors, general practitioners and the medical community at large.

The MAI is a member of the World Headache Alliance, the European Headache Alliance and the Neurological Alliance of Ireland. Through our own organisation and these umbrella groups the interests of migraineurs are widely represented and recognised.”

FibroIreland

FibroIreland has been created for people affected by fibromyalgia. It provides general information to help you understand how fibromyalgia affects you and what you can do to manage it. It also tells you where to find further information and advice.

We aim to :

Listen with empathy to your experience of FM
Make FM better known and understood
Provide up-to-date information on FM
Support those caring for people with FM

Contact details:

Mobile 0879976252

Web www.fibroireland.com

Facebook www.facebook.com/NorthsideFibroDublin

European Network of Fibromyalgia Associations

Fibromyalgia affects an estimated 14 million people in Europe. It has a devastating impact on those who suffer from the disease and also for those carers and families who are trying to support them. Also it imposes a large economic burdens on society and individualsPromote Fibromyalgia awareness to politicians, physicians, scientists and the general public on a European level.As Fibromyalgia is adopted by the European politicians by way of accepting the written declaration 69/2008. It is for ENFA to get the written declaration into action with a primary goal to get Fibromyalgia as a key topic in the European Health Programme.

Aware

Aware is the national organisation providing support, education and information services for individuals, families and communities impacted by depression and related conditions. Services include support line, support mail, support groups, Life Skills CBT programmes, secondary schools awareness programme and [email protected] training programmes.

EUROSPINE Patient Line

EUROSPINE, an organisation spanning Europe, aims to stimulate the exchange of knowledge and ideas in the field of research, prevention and treatment of spine diseases and related problems and to coordinate efforts undertaken in European countries for further development in this field.

Patient Line is part of EUROSPINE, whose goal is to provide up-to-date information to patients. It is managed and edited by a committee of experts from different disciplines, including clinicians and researchers, and the information is based on the most recent evidence.

Fibromyalgia UK

AIMS

That all people with Fibromyalgia in the UK should have access to the mechanisms needed for fast and accurate diagnosis.
That all people with Fibromyalgia in the UK should have access to effective, evidence based treatments.
That all people affected by Fibromyalgia in the UK should not be subject to discrimination because of the condition, including discrimination by employers, medical professionals or the state.

American Chronic Pain Association

The American Chronic Pain Association has been helping people live fuller lives in spite of their pain for 34 years. Our goal is to provide them with the tools they need, in addition to what their health care provider offers, so that they can improve their skills in the self-management of their chronic pain. We focus on helping the person with pain become an active partner on the health care team.

ACPA Mission:

To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
To raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.

Alzheimer Society of Ireland

The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. The Alzheimer Society of Ireland was founded in 1982 by a small group of people who were caring for a family member with Alzheimer’s or a related dementia. The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. The Alzheimer Society of Ireland was founded in 1982 by a small group of people who were caring for a family member with Alzheimer’s or a related dementia.

A Way with Pain

A UK charity set up in 2013 offering support for people living with chronic pain.

Julia O'Connor

Julia has fifteen years experience working in the not for profit sector in a variety of roles including marketing business development volunteer management and operations. She has worked for charities education and research organisations and a social enterprise.

Michelle Wallace

Business Operations Manager with over 25 years experience across professional services, legal, Health and industry. Managing finance operations HR Corporate Governance and Communications.

Hell & Back is Ireland’s toughest physical and mental endurance challenge. These challenges are geared for either individuals or teams. We hope that these events will proceed during 2021 so please keep us in mind. You can check out their web-site below for a challenge near you and contact Christina [email protected] for your fundraising pack!

www.hellandback.ie/Current-Events.aspx

All around the country there are various virtual events that take place from 5K walks, runs, cycle challenges, marathons etc. If you are thinking of taking up a challenge then please consider fundraising for Chronic Pain Ireland – we need your Help. Once you are registered for your particular event, please contact Christina on [email protected] who will be happy to take you through some helpful fundraising tools and post out your fundraising pack and that all important CPI t-shirt!

The simplest way to use these events to raise money on our behalf is to view some of the events listed on our events section of iDonate.ie and then setting up your own fundraising page that you can share with family and friends. This year why not hold a virtual fundraiser, it can be a music gig, walk, jog, run, cycle. We also had a sponsored sheep-shearing event and we are grateful to all who step forward.

We’ve loads of idea’s listed on our iDonate events pages and while it is not possible for group events during 2020 hopefully 2021 will see us gathering again.

iDonate.ie is dedicated to providing services to charities and fundraisers making it easy, simple and safe for you to raise money for your chosen charity.

Setting up your page takes just a few minutes, and you can then ask all your friends, family and social media contacts to support you on your iDonate.ie page.

www.idonate.ie

The Around the World #doingittogether challenge will run for 24 hours starting at midday on Saturday June 19th and finishing at midday June 20th. We want to go around the world in 24 hours and we are #doingittogether! Our target is to collectively cover 42,000km through various forms of activity, with all kms being pledged towards charities across Ireland.

Its open to everyone and any activity counts whether it’s running, walking, swimming, cycling, rolling or crawling! To take part Click HERE to setup your iDonate fundraising page for Chronic Pain Ireland and “pledge” the number of KMs you will complete. Or simply enter the number of KMs you did on the day.

Share your cause with family and friends and then head out on the weekend of June 19th and get active. On the weekend we will also have options to donate for those who want to do so. All donors can donate directly to their preferred cause and let us know how many kms they completed in aid of that cause.

Together we can go around the world and do a world of good! This virtual fundraising campaign is a partnership with iDonate and Charities Institute Ireland in aid of Irish charities.

Join the Around the World Challenge and show your support for Chronic Pain Ireland #doingittogether

Extensive experience in business strategy & development with qualifications including Business Degree from WIT and MBA from TCD. 10+ years serving as a Board Member on the UK’s largest personal insolvency firm, Creditfix in Glasgow and currently manages his own management consultancy practice. EAs a niche, but growing area in healthcare, John’s ambition for Chronic Pain Ireland is to aid the charity’s ambitious expansion

Virtual Coffee Morning in aid of Chronic Pain Ireland

Would you be able to hold a virtual coffee morning?

If you normally meet friends for coffee, why not invite them to your virtual one and ask them to donate what they would have spent. Ask your friends and family to join you on the day.

If you would like to host a coffee morning please register here:

With your help we can provide more services and support to those living with chronic pain conditions. So please get together with your friends and family to help and ensure that no one has to suffer alone!

Your time, effort, and contributions will enable us to provide support service to people and their families who are affected by chronic pain and the impact it has on every aspect of their lives.

Every year Chronic Pain Ireland supports hundreds of people and with your help we hope to reach out to the many thousands of people who are struggling. Recent statistics show that 13% of the Irish population are affected by pain and of that number 89% feel that they cannot speak to family members or friends about their condition.

Chronic Pain Ireland is a registered charity and receives SSNO funding which covers the cost of our part-time administrator. We are very grateful to SSNO funding and the ongoing support of Pobal and the Department of Rural and Community Development under the Programme and Scheme to Support National Organisations (SSNO) 2019-2022.

While we are delighted to be receive this support we are heavily reliant on donations from our members and the public to cover all our support services which includes our telephone support line a vital link for so many who feel alone. In 2020 we moved to providing online supports as our it was unsafe to hold workshops, public awareness events and talks.

If you can help, please get in touch.

Christina Donnelly

BA (Hons) Business Studies has extensive managerial expertise within educational sector including finance, project, office & event management. Working with CPI since 2008 responsibilities include governance, office management, support services, helpline & event management. Current Board Member Carmichael Ireland, member of Risk & Governance Committee and Patient Representative National Clinical Effectiveness Committee.

Niamh Walsh

15+ years’ experience in senior roles in marketing, communications, content management & e-learning. Studied Philosophy & Classics, Computer Science, Training and Continuing Education, Management & Marketing, Business & Executive Coaching and is a certified Lean Six-Sigma Green Belt. Currently a trainee psychotherapist in Year 3 of an MA in Humanistic and Integrative Psychotherapy with The Tivoli Institute.

John Kenny

M.Sc. Pharmaceutical Science, M.Sc. Chemistry, Dip. Corporate Governance. John has worked in the Pharmaceutical sector for 20+ years and has served on Boards in both the Pharma and Charity sectors. He is a paraplegic and has suffered bouts of chronic pain since sustaining a life-changing injury 35 years ago.

Louise Riordan

MA Gender, Globalisation & Rights (NUIG); Bachelor Commerce and French (UCC). Louise is the Academic Health Centre Project Manager for Ireland South Women & Infants Directorate. She has extensive experience in the not-for profit and public sector in Ireland with a special interest in education, social innovation, equality and health.

Paul Tuhill

Lead SRE SWAT Engineer working in the IT field for over 25 years, providing technical expertise and guidance to CPI. Paul is also a board member for another Dublin based charity. When not working or supporting charities he studies philosophy and politics.

Martina Phelan

Currently, studying Applied Social Studies & Information, Advice and Advocacy. 20+ years’ experience in payroll accountancy, payroll systems implementation and the policies that underpin them in a variety of industries ranging from pharmaceutical to aviation. Studied Volunteer Programme Management and updated governance & group facilitation skillsets. Currently engaged in EU Public Patient Involvement (PPI) research projects. Martina has lived with chronic pain for over 30 years.

Brain Awareness Week 2023

Recognizing and Coping with Stigma: A silent enemy

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