List Of Conditions And Irish Support Groups
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Chronic Pain Ireland often hears from people who’ve just found out that they have chronic pain or a chronic condition where pain is a factor and they are struggling to cope. We also hear from people who have been in pain for months or years and don’t know where to turn. Chronic Pain Ireland offers specific support services to help you better manage living with chronic pain, including self-management workshops and events.
However, you may also need to access additional support specific to your condition. Below is a list of conditions, syndromes and diseases where chronic pain may be a factor. If you click the tabs, you will find a brief description and links to registered charities/support groups offering a range of services.
This list demonstrates the true scale of people living with pain.
Please note:
Chronic Pain Ireland does not guarantee or make any warranties, expressed or implied, as to the quality of advice or support given by any listed group or organization.
The listings below are based on sourced information and the individual charities/support group websites.
4 Q Deletion Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| 4Q Deletion Syndrome is a rare chromosomal disorder where there is a deletion of a portion of the 4th chromosome. | National Organisation for Rare Disorders https://rarediseases.org | 221q11 Ireland |
Aids Related Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Chronic pain associated with HIV includes regional and widespread musculoskeletal pain of neuropathic and inflammatory nature | National Institutes of Health(.gov) | HIV in Ireland | https://www.hivireland.ie |
Alcoholism
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Prolonged AUD can trigger numerous chronic diseases and some cancers. Along with these long-term impacts, more than half of people with AUD experience some type of persistent pain. | National Institutes of Health http://health.nih.gov |
Drink Aware Ireland |
Click Here |
Alexander Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Alexander disease is an extremely rare, usually progressive and often fatal, neurological disorder. | National Organisation for Rare Disorders https://rarediseases.org | Rare Diseases Ireland | https://rdi.ie/ |
ALS Lou Gehrig’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Also known as MND. Rare neurological disease affecting motor neurons—those nerve cells in the brain and spinal cord that control voluntary muscle movement. | https://www.mayoclinic.org/ | Irish Motor Neurone Disease Association | https://imnda.ie/ |
Ankylosing Spondylitis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Ankylosing spondylitis is an inflammatory arthritis where the main symptom is back pain and changes can be seen to the sacroiliac joints on x-rays. | https://www.nhs.uk | Arthritis Ireland | https://www.arthritisireland.ie/ |
Arachnoiditis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| It is an inflammation of the membranes which surrounds the spinal cord. Can cause severe stinging and burning pain. | https://my.clevelandclinic.org/ | Rare Diseases Ireland |
Arthritis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Arthritis is a term given to a group of conditions that cause pain, stiffness and swelling in a joint. | https://hse.ie | Arthritis Ireland | https://www.arthritisireland.ie/ |
Arthrofibrosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Arthrofibrosis is a fibrotic joint disorder characterised by excessive collagen production and adhesions that result in restricted joint motion and pain. Referred to by a number of names including frozen shoulder, adhesive capsulitis, joint contracture, stiff knee and stiff elbow | Click Here | Arthritis Ireland | Click Here |
Ataxic Cerebral Palsy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Ataxic cerebral palsy is caused by damage to the balance center of the brain, the cerebellum. | https://cerebralpalsy.org.au/ | Ataxia Foundation Ireland | https://afi.ie |
Autoimmune Atrophic Gastritis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Autoimmune atrophic gastritis (AAG) is a chronic disease that affects the corpus-fundus of the stomach, and is characterized by the development two types of auto-antibodies: anti-parietal cells antibodies and anti-intrinsic factor antibodies. | https://my.clevelandclinic.org/ | Ataxia Foundation Ireland | https://afi.ie |
Autoimmune diseases
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| An autoimmune disease is the result of the immune system accidentally attacking your body instead of protecting it. As there are so many (over 100) where possible these are listed under specific names i.e. Lupus, Crohn’s etc. | Click Here |
Avascular Necrosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Avascular Necrosis is the cellular death (necrosis) of bone components due to interruption of the blood supply. Without blood, the bone tissue dies and the bone collapses. If avascular necrosis involves the bones of a joint, it often leads to destruction of the joint articular surfaces. | https://www.hopkinsmedicine.org/ | Rare Diseases Ireland | https://rdi.ie/ |
Back pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Back pain can happen when mechanical or structural problems develop in the spine, discs, muscles, ligaments, or tendons in the back, or compress a nerve | https://www.niams.nih.gov/health-topics/back-pain | Chronic Pain Ireland | https://chronicpain.ie |
Barretts-Esophagus
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Is a condition where the pink lining of the swallowing tube becomes damaged by Acid Reflux. Also known as GERD. | https://internationalpain.org/barretts-esophagus/ | Irish Cancer Society | https://www.cancer.ie/ |
Behcet’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Rare disease which causes blood vessel inflammation throughout your body. | Behçet’s disease – NHS (www.nhs.uk) | Rare Diseases Ireland | https://rdi.ie/ |
Bell’s Palsy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Unexplained facial weakness or paralysis which can cause pain and discomfort to one side of your face. | https://rarediseases.org/rare-diseases/bells-palsy/ |
Rare Diseases Ireland | https://rdi.ie/ |
Blepharospasm
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Uncontrolled blinking of your eyelid which could develop long term eyelid twitching. | Dystonia Ireland | Blepharospasm – Dystonia Ireland |
Bloch-Sulzberger Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Rare disorder which can be inherited that causes abnormalities of your teeth, skeletal eyes and your nerves system. | https://internationalpain.org/Bloch-Sulzberger%20Syndrome/ | Rare Diseases Ireland | https://rdi.ie/ |
Brachial Neuritis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| It is a form of peripheral neuropathy that affects your chest, shoulder arms and hands. | Brachial Neuritis | Johns Hopkins Medicine |
Rare Diseases Ireland | https://rdi.ie/ |
Burning Mouth Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| It is a burning sensation in your mouth or tongue which causes the mouth to become dry or give you a bitter or metallic taste. | https://internationalpain.org/burning-mouth-syndrome/ |
Bursitis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| It is a condition that can affect the small fluid filled sacs which cushion your bones, tendons and muscles. | Bursitis – Symptoms and causes – Mayo Clinic |
Arthritis Ireland | https://www.arthritisireland.ie |
Cadasil Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Is a rare disease which includes migraine headaches and strokes which leads on to Dementia. | https://internationalpain.org/cadasil-syndrome/ |
Alzheimer Society of Ireland | www.alzheimer.ie |
Cancer Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Some cancer treatments cause peripheral neuropathy, a result of damage to the peripheral nerves. | National Cancer Institute (.gov) |
Irish Cancer Society | https://www.cancer.ie/cancer-information-and-support/cancer-information |
Carpal Tunnel Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A trapped nerve in your wrist which causes you pain. | tps://www.mayoclinic.org/diseases-conditions/carpal-tunnel-syndrome/symptom | Arthritis Ireland |
Cauda Equina Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Compression of the nerves in the lower portion of the spinal canal due to injury. | Cauda Equina Syndrome: Symptoms, Treatment & Causes (clevelandclinic.org) | Spinal Injuries Ireland | Cauda Equina Syndrome (CES) – Spinal Injuries |
Causalgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Causalgia, now known as complex regional pain syndrome type II, is a neurological condition that can cause intense and prolonged pain | Causalgia – Neurosurgery | UCLA Health | Chronic pain Ireland | https://chronicpain.ie |
Central Cervical Cord Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Central cord syndrome (also known as central cervical cord syndrome) is the most common form of an “incomplete spinal cord injury”—one in which the spinal cord’s ability to transmit some messages to or from the brain is damaged or reduced below the site of injury to the spinal cord | Central Cord Syndrome | National Institute of Neurological Disorders and Stroke (nih.gov) | Spinal Injuries Ireland | https://spinalinjuries.ie/ |
Central Pain Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Central pain syndrome is a neurological condition caused by damage to or dysfunction of the central nervous system (CNS). The CNS includes the brain, brainstem, and spinal cord. This syndrome can be caused by: Stroke. Multiple Sclerosis. | Central Pain Syndrome | National Institute of Neurological Disorders and Stroke (nih.gov) |
Irish Heart Foundation
Croi |
Cerebral Palsy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Cerebral Palsy a group of disorders that affect a person’s ability to move and maintain balance and posture. Most common Motor Disability in children. | Cerebral palsy – Symptoms and causes – Mayo Clinic | Celebral Palsy Foundation | https://www.yourcpf.org/ireland/ |
Cerebrospinal Fluid (CSF) Leaks
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
|
Cerebrospinal fluid (CSF) surrounds your brain and spinal cord and provides a cushion to protect them from injury. The spinal cord and CSF are surrounded by three layers of membranes. A CSF leak occurs when there is a hole or tear in the outermost layer of these membranes (dura mater), which allows some of the fluid to escape The most common symptom of a spinal CSF leak is a headache and may headache and may include pain and other symptoms. |
Click Here | CFS Leak Association | https://csfleak.uk/ |
Charcot-Marie-Tooth Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Charcot-Marie-Tooth Disease is a group of inherited disorders that can damage the peripheral nerves. | Charcot-Marie-Tooth disease – NHS (www.nhs.uk) |
Muscular Dystrophy of Ireland | https://www.mdi.ie |
Chemical Injury Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Chemical Injury Neuropathy is nerve damage caused by toxic (harmful) substances. It is a form of peripheral neuropathy, damage to the nerves away from the brain and spinal cord. Peripheral neuropathy occurs in the nerves of your arms and hands or legs and feet. | Toxic Neuropathy | Brain Institute | OHSU |
https://chronicpain.ie/ |
Chiari Malformation
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A Chiari malformation is a problem in which a part of the brain (the cerebellum) at the back of the skull bulges through a normal opening in the skull where it joins the spinal canal. This puts pressure on parts of the brain and spinal cord, and can cause mild to severe symptoms | Click Here |
Chronic Fatigue Syndrome (CFS)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complicated disorder. It causes extreme fatigue that lasts for at least six months. Symptoms worsen with physical or mental activity but don’t fully improve with rest. | Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) – NHS (www.nhs.uk) | Irish ME/CFS Association | Irish ME/CFS Association (irishmecfs.org) |
Chronic Functional Abdominal Pain (CFAP)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Chronic functional abdominal pain occurs because of altered sensitivity to nerve impulses in the gut and brain, and it is not associated with altered motility in the intestines. | What is Chronic Functional Abdominal Pain (CFAP) – pain Foundation info (internationalpain.org) |
Chronic Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Chronic primary pain represents chronic pain as a disease in itself. Chronic secondary pain is pain linked to an underlying condition. | https://chronicpain.ie/what-is-chronic-pain/ | Chronic Pain Ireland | https://chronicpain.ie/ |
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Chronic inflammatory demyelinating polyneuropathy (CIDP) is a neurological disorder that involves progressive weakness and reduced senses in the arms and legs. It is caused by damage to the fat-based protective covering on nerves called the myelin sheath. | Chronic Inflammatory Demyelinating Polyneuropathy – Symptoms, Causes, Treatment | NORD (rarediseases.org) | Rare Diseases Ireland | https://rdi.ie |
Chronic Pancreatitis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Is a condition where the pancreas is permanently damaged through inflammation. | Chronic pancreatitis – NHS (www.nhs.uk) |
Coccyx Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Also known as the tailbone. Tailbone pain occurs at the bony structure at the bottom of your spine. Tailbone pain that doesn’t improve is called chronic coccydynia. | Click Here |
Chronic Pain Ireland | https://chronicpain.ie/ |
Complex Regional Pain Syndrome (CRPS)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Complex regional pain syndrome (CRPS) is a poorly understood condition where a person experiences persistent severe and debilitating pain. | Click Here |
Chronic Pain Ireland | https://chronicpain.ie/ |
Corneal Neuropathic Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Comes from dysfunctional nerves causing pain burning sting and eye pain. Neurological diseases, some inflammatory diseases or surgical interventions can be the underlying cause of corneal neuropathic pain. | Understanding Neuropathic Corneal Pain-Gaps and Current Therapeutic Approaches – PMC (nih.gov) |
Coronavirus COVID19 (long COVID)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Post COVID-19 Condition, (long COVID), can affect anyone exposed to SARS-CoV-2 and is the continuation or development of new symptoms 3 months after the initial infection. Persistent bodily pain can be one of the long COVID symptoms. |
Cranial Neuritis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Cranial neuritis is the inflammation of a cranial nerve. The inflammatory process may cause destruction and/or demyelination of the nerves. sharp, stabbing pain about the face and head. |
Crohn’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Crohn’s Disease is a lifelong condition where parts of the digestive system become inflamed. It’s one type of a condition called inflammatory bowel disease (IBD) that can cause the swelling of your digestive tract which can lead to pain, severe diarrhoea, weight loss, tiredness and malnutrition. | Crohn’s & Colitis Ireland |
|
Cushing’s syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Cushing’s syndrome is a condition caused by having too much of a hormone called cortisol in your body. It can be serious if it’s not treated. |
https://www.nhs.uk/conditions/cushings-syndrome/
|
Deep Gluteal Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| DGS an under-diagnosed entity characterized by pain and/or dysesthesias in the buttock area, hip or posterior thigh and/or radicular pain due to a non-discogenic sciatic nerve entrapment in the subgluteal space. | https://chronicpain.ie |
Degenerative Disc Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Degenerative disc disease where the intervertebral disc (gel-like material between vertebrae) has begun to wear out. | Degenerative Disc Disease | Cedars-Sinai | https://chronicpain.ie |
Dercum’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Decum’s disease also called Adiposis Dolorosa is a rare condition that is characterized by multiple, painful fatty lipomas (benign, fatty tumours) that occur chiefly in post-menopausal, obese women of middle age. | About Dercum Disease (genome.gov) | chronic pain Ireland |
Dermatomyositis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Dermatomyositis is a rare type of inflammatory myopathy characterized by inflammatory and degenerative changes of the muscles. | https://rarediseases.org/rare-diseases/dermatomyositis/ |
Cork Rheumatology | https://arthritisireland.ie |
Diabetic Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Diabetic neuropathy is when diabetes causes damage to your nerves. It can affect different types of nerves in your body, including in your feet, organs and muscles. | Diabetic neuropathy (nerve damage) | Diabetes UK |
https://www.diabetes.ie/ |
Dupuytren’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Dupuytren’s is a gradual condition that causes tissue in your palm to thicken, can be painful and cause hand mobility issues. | Dupuytren’s Disease – Dupuytren’s Contracture – OrthoInfo – AAOS |
https://www.dupuytren-online.info/ |
Dysautonomia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System which controls many important body processes e.g. blood pressure, heart rate, breathing, body temperature, digestion, sweating, urination, and sexual response. There are many different types of dysautonomias. | Dysautonomia: Symptoms, Causes, Types, & How to Live With (clevelandclinic.org) |
Irish Dysautonomia Awareness | Irish Dysautonomia Awareness | Raising Awareness of Dysautonomia in Ireland (wordpress.com) |
Dystonia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Dystonia is a neurological movement disorder characterised by persistent or intermittent muscle contractions, forcing certain parts of the body into abnormal sometimes painful, movements, postures, or both and may resemble a tremor. | Dystonia | National Institute of Neurological Disorders and Stroke (nih.gov) | Dystonia Ireland | Dystonia Ireland |
Ehlers Danlos Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Chronic pain in the Ehlers–Danlos syndromes, especially in hypermobile EDS, is very common and may be severe. | Click Here | The Ehlers-Danlos Society | Click Here |
Electric Injury / Electric Shock
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Electrical shock can result in neurological complications, involving both peripheral and central nervous systems. | Electrical Injuries – StatPearls – NCBI Bookshelf (nih.gov) | Chronic Pain Ireland | https://chronicpain.ie |
Endometriosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Endometriosis is a common chronic inflammatory condition where tissue that normally grows inside the uterus, grows outside. Most commonly found in the pelvic area, peritoneum, ovaries, bowel and bladder. In rare cases, it can be found in other sites in the body. These deposits cause an inflammatory reaction that can lead to pain, scar tissue and adhesion formation. | Click Here | Endometriosis | Home – Endometriosis Association of Ireland |
Epidural Fibrosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Epidural Fibrosis is scarring that naturally occurs after back surgery. It is one of several possible causes of a condition known as failed back surgery syndrome (FBSS) where the formation of scar tissue near the nerve root, can put pressure on the nerve roots and thereby cause pain. | https://internationalpain.org/epidural-fibrosis/ | Chronic Pain Ireland | https://chronicpain.ie |
Epilepsy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Epilepsy is a collective term for a large group of anatomical and functional disorders of the brain that are characterized by repeated seizures. Epilepsy and pain, especially headache disorders, can co-occur | Click Here | Epilepsy Ireland | | Epilepsy Ireland |
Erythromelalgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Erythromelalgia is a rare disorder that affects the feet and less extends the hands. Symptoms include intense pain and severe redness. | Erythromelalgia – NHS (www.nhs.uk) |
The Erythromelalgia Association |
https://erythromelalgia.org/ |
Farber
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Is caused by an acid ceramidase deficiency. A disorder that is caused by a mutation of the ASH1 gene. | Farber’s Disease | National Institute of Neurological Disorders and Stroke (nih.gov) |
Fabry’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Fabry disease (also known as alpha-galactosidase-A deficiency) is an inherited neurological disorder that occurs when the enzyme alpha-galactosidase-A cannot efficiently break down fatty materials known as lipids into smaller components that provide energy to the body | Click Here | Fabry Ireland | Fabry Ireland |
Failed Back Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Failed back surgery syndrome (FBSS) is defined by the International Association for the Study of Pain as lumbar spinal pain of unknown origin either persisting despite surgical intervention or appearing after surgical intervention for spinal pain originally in the same topographical location. | Click Here | Chronic Pain Ireland | https://chronicpain.ie |
Fibromyalgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Fibromyalgia is a condition that causes widespread pain all over the body, sleep problems, fatigue, and often emotional and mental distress. People with fibromyalgia may be more sensitive to pain. | Fibromyalgia | Arthritis | CDC |
Fibro Ireland
Chronic Pain Ireland |
Friedreich’s Ataxia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Friedreich’s Ataxia is a rare, inherited, degenerative disease that damages the spinal cord, peripheral nerves and the cerebullum. | Friedreich’s Ataxia | Johns Hopkins Medicine | Ataxia Foundation Ireland | https://www.afi.ie/ |
Gastroparesis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Gastroparesis is a rare chronic condition that affects the stomach muscles and prevents proper stomach emptying. | Gastroparesis – Symptoms and causes – Mayo Clinic | https://iffgd.org/ |
Guillain Barre Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A rare but rapidly progressive disorder that that consists of inflammation of the nerves causing muscle weakness, sometimes progressing to complete paralysis. | Click Here | GAIN | https://iicn.ie/guillain-barre-syndrome-support-group/ |
Headaches
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A headache is pain or discomfort in the head or face area. Types of headaches include migraine, tension, and cluster. Headaches can be primary or secondary. If it is secondary, it is caused by another condition. | Headache | Johns Hopkins Medicine |
Migraine Ireland
|
https://migraine.ie/ |
Herniated Disc
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A herniated disc (also called bulged, slipped or ruptured) is a fragment of the disc nucleus that is pushed out of the annulus, into the spinal canal. Discs that become herniated usually are in an early stage of degeneration. | Herniated disk – Symptoms and causes – Mayo Clinic | Chronic Pain Ireland | https://chronicpain.ie |
HIV/AIDS
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
|
HIV (human immunodeficiency virus) is a virus that attacks the body’s immune system. If HIV is not treated, it can lead to AIDS (acquired immunodeficiency syndrome). chronic pain is very common in people with HIV. |
About HIV/AIDS | HIV Basics | HIV/AIDS | CDC | HIV Ireland | https://www.hivireland.ie/ |
Huntington’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Huntington’s disease is a rare, inherited disease that causes the progressive breakdown (degeneration) of nerve cells in the brain. | Huntington’s disease – Symptoms and causes – Mayo Clinic | Huntington’s Disease Association of Ireland | https://www.huntingtons.ie/ |
Hydrocephalus
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Hydrocephalus once known as ‘water on the brain’is where cerebro-spinal fluid (CFS) is produced constantly inside each of the four spaces or ventricles inside the brain. The condition is caused by the inability of CSF to drain away into the bloodstream | Hydrocephalus – Symptoms and causes – Mayo Clinic | Spina Bifida Hydrocephalus Ireland | SBHI |
Idiopathic Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
|
Neuropathy is when nerve damage interferes with the functioning of the peripheral nervous system (PNS). When the cause can’t be determined, it’s called idiopathic neuropathy. chronic pain is very common in people with HIV. |
Idiopathic Polyneuropathy (hopkinsmedicine.org) | Chronic Pain Ireland | https://chronicpain.ie |
Intercostal Neuralgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Intercostal neuralgia, also known as chest wall pain, is a condition that causes pain along the intercostal nerves between your ribs. Intercostal neuralgia is a painful disorder of the nerves running between the ribs, and is caused by damage to one of those nerves and/or loss of function of that nerve. | Chronic Pain Ireland | https://chronicpain.ie |
Interstitial Cystitis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
|
Interstitial cystitis is a chronic condition causing bladder pressure, bladder pain and sometimes pelvic pain. The pain ranges from mild discomfort to severe pain. The condition is a part of a spectrum of diseases known as painful bladder syndrome
|
Interstitial Cystitis | Johns Hopkins Medicine | Chronic pain Ireland |
https://www.facebook.com/people/Irish-Interstitial-Cystitis-Support-Network/100065614687530/ |
Irritable Bowel syndrome (IBS)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Irritable Bowel Syndrome is a chronic intestinal disorder causing pain in the stomach, gas, diarrhoea, and constipation. It requires management over a long time. | Irritable bowel syndrome – Symptoms and causes – Mayo Clinic | https://crohnscolitis.ie/ |
Juvenile Dermatositis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Juvenile dermatomyositis (JDM) is a rare but complex and potentially life-threatening autoimmune disease of childhood, primarily affecting proximal muscles and skin. | Juvenile Dermatomyositis (for Parents) – Nemours KidsHealth | Rare Diseases Ireland | https://rdi.ie/ |
Leprosy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Leprosy is an infectious disease that causes severe, disfiguring skin sores and nerve damage in the arms and legs. | Leprosy (who.int) |
Loin Pain-Hematuria Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Loin pain hematuria syndrome (LPHS) is the combination of debilitating unilateral or bilateral flank pain and microscopic or macroscopic amounts of blood in the urine that is otherwise unexplained. Causes severe, unexplained loin pain which can be on one side of body or both sides. The frequency and length of pain episodes can vary. | Loin Pain-Hematuria Syndrome |
Lupus
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Lupus is a systemic disease where your body’s immune system attacks your own tissues and organs (autoimmune disease) and it can affect many different parts of your body. | Lupus – NHS (www.nhs.uk) | Lupus Group Ireland | https://www.arthritisireland.ie/lupus |
Lyme disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Lyme disease is caused by the bacterium Borrelia burgdorferi and rarely, Borrelia mayonii. It is transmitted to humans through the bite of infected blacklegged ticks. Typical symptoms include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system. | Lyme Disease | Lyme Disease | CDC | Tick Talk Ireland | https://www.ticktalkireland.org/ |
Meralgia Paresthetica
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Meralgia paresthetica (also known as lateral femoral cutaneous nerve entrapment) is a condition characterized by tingling, numbness and burning pain in your outer thigh. It’s caused by compression of the nerve that provides sensation to the skin covering your thigh. | Meralgia paresthetica – Symptoms and causes – Mayo Clinic | Chronic Pain Ireland | https://chronicpain.ie |
Migraine
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A migraine is a headache that can cause severe throbbing pain or a pulsing sensation, usually on one side of the head. It’s often accompanied by nausea, vomiting, and extreme sensitivity to light and sound. Migraine attacks can last for hours to days, and the pain can be so severe that it interferes with your daily activities. | Migraine – Symptoms and causes – Mayo Clinic | Migraine Association of Ireland | Migraine.ie |
Mitochondrial Disorders
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Mitochondrial disorders include a large group of complex disorders that may affect children at any age. Mitochondrial disorders occur when the mitochondria of the cell fail to produce enough energy for the cell or organ to function properly. There is a wide range of symptoms and severity. | Mitochondrial Diseases: Causes, Symptoms & Treatment (clevelandclinic.org) | Metabolic.ie | Mitochondrial Disorders – Metabolic |
Mononeuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Mononeuropathy is damage that happens to a single nerve, or a nerve group, usually close to the skin and near a bone. One of the best known forms of mononeuropathy is carpal tunnel syndrome. Treatments range from relieving the pressure on the nerve to analgesics and steroid injections to surgery. | Mononeuropathy: What is It & How to Treat It (clevelandclinic.org) | Chronic Pain Ireland | https://chronicpain.ie |
Multifocal Motor Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Multifocal Motor Neuropathy is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system. Patients with MMN can have other symptoms, including twitching, or small random dimpling of the muscle under the skin. |
Multifocal Motor Neuropathy – Symptoms, Causes, Treatment | NORD (rarediseases.org) |
Irish Motor Neurone Disease Association | IMNDA | Irish Motor Neurone Disease Association | |
Multiple Sclerosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). The immune system attacks the protective sheath (myelin) that covers nerve fibres and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerve fibres. | Multiple sclerosis – Symptoms and causes – Mayo Clinic | MS Ireland | https://www.ms-society.ie |
Musculoskeletal Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Musculoskeletal pain is defined as acute or chronic pain that affects bones, muscles, ligaments, tendons, and even nerves. | Musculoskeletal health (who.int) | Chronic Pain Ireland |
Myofascial Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Myofascial pain syndrome is a chronic condition that affects your muscles and the fascia (thin connective tissue) around them. With myofascial pain syndrome, pressing on trigger points (knots) in your muscle causes localized or referred pain. | Myofascial Pain Syndrome: Symptoms, Diagnosis & Treatment (clevelandclinic.org) | Chronic pain Ireland | https://chronicpain.ie |
Myositis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Myositis is a disease that makes your immune system attack your muscles. It causes chronic inflammation — swelling that comes and goes over a long time. Eventually, this inflammation makes your muscles feel increasingly weak. It can also cause muscle pain. | Myositis: Symptoms, Causes & Treatment (clevelandclinic.org) | Muscular Dystrophy Ireland | https://www.mdi.ie/ |
Neurofibromatosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Neurofibromatosis (NF) is a genetic neurological disorder that can affect the brain, spinal cord, nerves and skin. Tumors, or neurofibromas, grow along the body’s nerves or on or underneath the skin. There are three types and type 3 can cause chronic pain. | Click Here | NF Association of Ireland | https://www.nfaireland.ie/ |
Neuro Inflammatory Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Neuroinflammatory disorders are conditions in which inflammation affects the central nervous system (the brain, spinal cord, and/or optic nerves). | Neuroinflammatory diseases — Nuffield Department of Clinical Neurosciences (ox.ac.uk) | Various |
Neuro Muscular Dystrophy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Neuro Muscular Dystrophy, a group of inherited diseases characterized by weakness and wasting away of muscle tissue, with or without the breakdown of nerve tissue. There are 9 types of muscular dystrophy, with each type involving an eventual loss of strength, increasing disability, and possible deformity. | Types of Muscular Dystrophy and Neuromuscular Diseases | Johns Hopkins Medicine | Muscular Dystrophy Ireland | https://www.mdi.ie/ |
Neuropathic Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Neuropathic Pain is a complex chronic pain usually accompanied by tissue injury. Nerve fibres are painful, may be damaged or dysfunctional sending incorrect signalling to other pain centres. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. | Click here | Chronic Pain Ireland |
https://chronicpain.ie |
Occipital Neuralgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Occipital neuralgia is a rare neurological condition that involves shooting, shocking, throbbing, burning, or aching pain and headache that generally starts at the base of the head and spreads along the scalp on one or both sides of the head. |
Occipital Neuralgia – Causes, Symptoms, Diagnosis and Treatment (aans.org)
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Migraine Association of Ireland | http://www.migraine.ie/ |
Osteoarthritis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Osteoarthritis is a degenerative joint disease, in which the tissues in the joint break down over time. It is the most common type of arthritis and is more common in older people | Osteoarthritis – Symptoms and causes – Mayo Clinic | Arthritis Ireland | Osteoarthritis | Arthritis Ireland |
Paget’s disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A chronic condition in which both the breakdown and regrowth of bone are increased. | Click Here |
Pantothenate Kinase-Associated Neurodegeneration (PKAN)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Pantothenate kinase-associated neurodegeneration (PKAN), formerly called Hallervorden-Spatz syndrome, is a rare, inherited neurological movement disorder characterized by the progressive degeneration of specific regions in the central nervous system (neurodegenerative disorder) | Click Here | Rare Diseases Ireland | https://rdi.ie/ |
Parkinson’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Parkinson disease (PD) is a degenerative condition of the brain associated with motor symptoms (slow movement, tremor, rigidity and imbalance) and other complications including cognitive impairment, mental health disorders, sleep disorders and pain and sensory disturbances | Click Here | Move4 Parkinson’s | https://www.parkinsons.ie/ |
Pelvic Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Pelvic pain is abdominal pain located below the level of the umbilicus including, frequently, lower back pain with or without radiation into the thighs. Such pain may be acute, chronic, or intermittent and may be simulated by gastrointestinal disease such as diverticulitis or by lumbosacral arthritis | Pelvic pain – NHS (www.nhs.uk) |
Endometriosis Association of Ireland Chronic Pain Ireland |
Peripheral Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Peripheral neuropathy develops when nerves in the body’s extremities – such as the hands, feet and arms – are damaged. The symptoms depend on which nerves are affected | Peripheral neuropathy – NHS (www.nhs.uk) | Chronic Pain Ireland | https://chronicpain.ie |
Phantom Limb Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Phantom limb pain is the perception of pain or discomfort in a limb that is no longer there. | Click Here | Chronic Pain | https://chronicpain.ie |
Pinched Nerve
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| If a nerve is pinched for only a short time, there’s usually no permanent damage. Once the pressure is relieved, nerve function returns to normal. However, if the pressure continues, chronic pain and permanent nerve damage can occur. | Pinched nerve – Symptoms and causes – Mayo Clinic | Chronic Pain |
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Polymyalgia Rhuematica
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Polymyalgia rheumatica (PMR) is a condition that causes pain, stiffness and inflammation in the muscles around the shoulders, neck and hips. The main symptom is muscle stiffness in the morning that lasts longer than 45 minutes. It may also cause other symptoms, including: high temperature (fever) and sweating | Polymyalgia rheumatica – NHS (www.nhs.uk) | Arthritis Ireland | Polymyalgia rheumatica | Arthritis Ireland |
Post Cancer Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Some people get pain after cancer treatments like surgery or radiotherapy. Or, it might be a long term side effect of chemotherapy. Post treatment pain can start or get worse, months or even years after treatment has finished. This is due to the nervous system rewiring itself after some nerves have been damaged | About cancer pain | Coping with cancer | Cancer Research UK |
Irish Cancer Society Chronic Pain Ireland |
Post Mastectomy Pain Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Post-mastectomy pain syndrome (PMPS) is a neuropathic condition defined as pain located in the anterior surface of the chest axilla, shoulder or upper half of the arm that persists for longer than 3 months after surgery | Postmastectomy Pain Syndrome (cancercenter.com) |
Irish Cancer Society
Chronic Pain Ireland |
Post Thoracotomy Pain Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Post-thoracotomy pain syndrome or PTPS (chronic post-thoracotomy pain or post-thoracotomy neuralgia) is defined by the International Association for the Study of Pain (IASP) as ‘pain that recurs or persists along a thoracotomy incision at least two months following the surgical procedure. | International Association for the Study of Pain (IASP | Chronic Pain | https://chronicpain.ie |
Post-Herpetic Neuralgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Post-herpetic neuralgia is a common complication of shingles. It causes a burning pain in nerves and skin. The pain lasts long after the rash and blisters of shingles go away. The risk of post-herpetic neuralgia rises with age. | Post-herpetic neuralgia – NHS (www.nhs.uk) | Chronic Pain Ireland |
Post-Polio Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Post-polio syndrome (PPS) usually occurs 15-40 years after the infection and recovery. PPS is believed to be the result of a deterioration of nerve cells called motor neurons over many years that leads to loss of muscle strength and dysfunction. Polio and post-polio syndrome are caused by poliovirus. | Click Here | Polio Survivors Ireland | Post Polio Support Group – Polio Survivors Ireland |
Post-Surgical Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Tissue pain due to surgery.. | Persistent Postsurgical Pain | Anesthesiology | American Society of Anesthesiologists (asahq.org) |
Chronic Pain Ireland
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Post-Traumatic Stress Disorder (PTSD)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Post-traumatic stress disorder (PTSD) is caused by very stressful, frightening or distressing events. Someone with PTSD often relives the traumatic event through nightmares and flashbacks. |
Click Here | HSE Chronic Pain Ireland | Click Here |
Pressure Palsy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Hereditary neuropathy with pressure palsies (HNPP) is an inherited condition that causes numbness, tingling and muscle weakness in the limbs. It affects the peripheral nerves, which connect your brain and spinal cord to your muscles and cells that detect touch, pain and temperature. HNPP can affect anyone. | Hereditary neuropathy with pressure palsies (HNPP) – NHS (www.nhs.uk) |
PSPA Ireland Erbspalsy |
Primary Lateral Sclerosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Primary lateral sclerosis (PLS) is a rare, neuromuscular disorder that affects the central motor neurons and is characterized by progressive weakness and stiffness of the muscles of the legs. | https://rarediseases.org/rare-diseases/primary-lateral-sclerosis/ | Irish Motor Neurone Disease Association | https://imnda.ie |
Pudendal Neuralgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Pudendal neuralgia is long-term pelvic pain that originates from damage or irritation of the pudendal nerve – a main nerve in the pelvis. Both men and women can suffer from pudendal neuralgia. | Pudendal neuralgia — Womens Health Group | Chronic Pain Ireland | https://chronicpain.ie |
Raynaud’s Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Raynaud’s (ray-NOSE) disease causes some areas of the body — such as fingers and toes — to feel numb and cold in response to cold temperatures or stress. In Raynaud’s disease, smaller arteries that supply blood to the skin narrow. This limits blood flow to affected areas, which is called vasospasm. | Raynaud’s disease – Symptoms and causes – Mayo Clinic | Arthritis Ireland | https://arthritisireland.ie |
Restless Leg Syndrome
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Restless legs syndrome (RLS) is a condition that causes an uncontrollable urge to move the legs, usually because of an uncomfortable sensation. It typically happens in the evening or night time hours when you’re sitting or lying down. Moving eases the unpleasant feeling temporarily. | Restless legs syndrome – Symptoms and causes – Mayo Clinic | Chronic Pain Ireland | https://chronicpain.ie |
Rheumatoid Arthritis (RA)
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Rheumatoid arthritis is a condition that causes pain and swelling in the joints. Hands, feet and wrists are commonly affected, but it can also affect other parts of the body. Rheumatoid arthritis can make your joints feel stiff and can leave you feeling generally unwell and tired | https://www.hse.ie | Arthritis Ireland | Rheumatoid arthritis | Arthritis Ireland |
RSD / CRPS /
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Reflex Sympathetic Dystrophy (RSD) Syndrome used to be the term used to describe one form of Complex Regional Pain Syndrome (CRPS). Both RSD and CRPS are chronic conditions characterized by severe burning pain, most often affecting one of the extremities (arms, legs, hands, or feet) | Chronic Pain Ireland | https://chronicpain.ie |
Sacroiliac Joint Dysfunction
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Dysfunction in the sacroiliac joint is thought to cause low back pain and/or leg pain. The leg pain can be particularly difficult and may feel similar to sciatica or pain caused by a lumbar disc herniation. | https://www.cedars-sinai.org/health-library/diseases-and-conditions/s/sacroiliac-joint-dysfunction.html | Arthritis Ireland | https://arthritisireland.ie |
Sarcoidosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Sarcoidosis is a disease characterized by the growth of tiny collections of inflammatory cells (granulomas) in any part of your body — most commonly the lungs and lymph nodes. But it can also affect the eyes, skin, heart and other organs. | Sarcoidosis – Symptoms and causes – Mayo Clinic | Irish Sarcoidosis Support Network | http://www.isarc.ie/ |
Sciatica
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Sciatica refers to pain that travels along the path of the sciatic nerve. Sciatica most often occurs when a herniated disk or an overgrowth of bone puts pressure on part of the nerve. This causes inflammation, pain and often some numbness in the affected leg. Most people recover fully from sciatica, often without treatment. But sciatica can damage nerves. | Sciatica – Symptoms and causes – Mayo Clinic | Chronic Pain Ireland | https://chronicpain.ie |
Scoliosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Is an abnormal curve of the spine often diagnosed in children. | Scoliosis – Symptoms and causes – Mayo Clinic |
Straight Ahead Ireland Scoliosis Awareness & Support Ireland |
Shingles
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Shingles is caused by the same virus that causes chickenpox and the rash usually affect one part of your body. Most people make a full recovery however post-herpetic neuralgia is a common complication of shingles. It causes a burning pain in nerves and skin. The pain lasts long after the rash and blisters of shingles go away. The risk of post-herpetic neuralgia rises with age |
Signs and Symptoms of Shingles (Herpes Zoster) | CDC |
Shingles Ireland Chronic Pain Ireland |
Sjogren’s
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Sjogren’s syndrome is an auto-immune condition, where white blood cells attack the body’s healthy tear and saliva glands, reducing the amount of saliva and tears produced. This causes a dry mouth and dry eyes, along with other related symptoms | Sjogren’s syndrome – Symptoms and causes – Mayo Clinic | Arthritis Ireland | Sjogren’s syndrome | Arthritis Ireland |
Spasmodic Torticollis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Spasmodic torticollis is an extremely painful chronic neurological movement disorder causing the neck to involuntarily turn to the left, right, upwards, and/or downwards. The condition is also referred to as “cervical dystonia”. | Cervical dystonia – Symptoms and causes – Mayo Clinic | Dystonia Ireland | Cervical Dystonia – Dystonia Ireland |
Spinal Stenosis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Spinal Stenosis is a medical condition where an area of the spine narrows — usually in the neck or lower back. This can compress the spinal cord or nerves | Spinal stenosis – Symptoms and causes – Mayo Clinic |
Spinal Injuries Ireland Chronic Pain Ireland |
Stroke Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A stroke keeps blood from reaching the brain and leads to brain tissue damage. About 10% of people who experience a stroke eventually develop severe pain that is called post-stroke pain, central pain, or thalamic pain (after the part of the brain typically affected) | Stroke Pain – Chronic Stroke Pain | Stanford Health Care | Irish Heart Foundation Croi |
https://irishheart.ie/your-health/heart-stroke-tests-procedures/stroke-rehabilitation/ |
Syringomyelia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| A rare condition where fluid filled cyst forms within your spinal cord. The cyst called syrinx can enlarge, damaging your spinal cord and causing pain, weakness and stiffness, among other symptoms. | Syringomyelia – Symptoms and causes – Mayo Clinic | Syringomyelia Chiari Ireland Group | http://www.syringomyelia.ie/ |
Tarlov Cyst Disease
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Tarlov cysts are fluid-filled sacs that affect the nerve roots of the spine, especially near the base of the spine. Symptoms sometimes caused by Tarlov cysts include pain in the area served by the affected nerves, numbness and altered sensation, an inability to control bladder and bowel movements (incontinence), impotence, and, rarely, weakness in the legs. | Tarlov Cysts – Symptoms, Causes, Treatment | NORD (rarediseases.org) | Rare Diseases Ireland | https://rdi.ie/ |
Thoracic Outlet Syndrome*
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Thoracic outlet syndrome (TOS) is a group of disorders that occur when blood vessels or nerves in the space between your collarbone and your first rib are compressed. This can cause shoulder and neck pain and numbness in your fingers | Thoracic outlet syndrome – Symptoms and causes – Mayo Clinic |
Toxic Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Is nerve damage due to toxic substances. It causes damage to your brain and spinal cord. | Types of Peripheral Neuropathy – Toxic/Secondary to Drugs – Toxins (uchicago.edu) | Irish Cancer Society | Nerve changes (peripheral neuropathy) | Irish Cancer Society |
Traumatic Brain Injury
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Traumatic brain injury usually results from a violent blow or jolt to the head or body. | Traumatic brain injury – Symptoms and causes – Mayo Clinic |
Acquired Brain Injury Ireland Headway |
Acquired Brain Injury Ireland – Brain Injury Support & Services (abiireland.ie) |
Transverse Myelitis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Transverse myelitis is a neurological disorder and inflammation of both sides of one section of the spinal cord. It interrupts the messages that the spinal cord nerves send throughout the body. This can cause pain, muscle weakness, paralysis, sensory problems, or bladder and bowel dysfunction | Transverse myelitis – Symptoms and causes – Mayo Clinic | Spinal Injuries Ireland | https://spinalinjuries.ie |
Trigeminal Neuralgia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Trigeminal neuralgia is a condition that causes painful sensations similar to an electric shock on one side of the face. This chronic pain condition affects the trigeminal nerve, which carries sensation from your face to your brain. | Trigeminal neuralgia – Symptoms and causes – Mayo Clinic | Trigeminal Neuralgia Ireland | https://www.tnnme.com/ireland-resources.html |
Ulcerative Colitis
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Is where your colon and rectum has become inflamed. It is a long term condition. | Ulcerative colitis – NHS (www.nhs.uk) | Crohn’s &Colitis Ireland | Crohn’s & Colitis Ireland | Empowering people living with Crohn’s & Colitis (crohnscolitis.ie) |
Vascular Pain
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Vascular pain is pain that is caused as a result of interruption of blood flow to a tissue, organ or nerves. Common symptoms include tingling, numbness, and pain. | What Does Vascular Pain Feel Like? (clevelandclinic.org) |
Irish Heart Foundation Vasculitis Ireland Awareness |
Vasculitis Neuropathy
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Vasculitis is a systemic illness with inflammation in the blood vessels and if supplying peripheral nerves, patients may develop vasculitic neuropathy | Vasculitic Neuropathy (hopkinsmedicine.org) |
Irish Heart Foundation
Vasculitis Ireland Awareness |
Vulvodynia
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Vulvodynia is persistent, unexplained pain in the vulva. The vulva is the female genital area including the skin surrounding the opening of the vagina. | Vulvodynia (vulval pain) – NHS (www.nhs.uk) |
Whiplash
| Definitions | Reference Source | Irish Support | Irish Support Organisations |
| Whiplash is an injury to your neck caused by your bending forcibly back and forth usually during a collision or as a result of a sporting injury. While most people who have a whiplash injury recover within a few weeks to a few months, some have persistent pain for several months or longer. | Whiplash Injury | Johns Hopkins Medicine |
Spinal Injuries Ireland Chronic Pain Ireland |
