Do you have Chronic Regional Pain Syndrome (CRPS)? Help drive future research.
Chronic Pain Ireland has a PPI (public patient involvement) partnership with UCD School of Public Health, Physiotherapy & Sports Science. The CRPS research is led by Dr. Keith Smart who is an Assistant Professor/Ad Astra Fellow with UCD and also is the Clinical Specialist Physiotherapist in St Vincent’s University Hospital.
Now more than ever, it is important to ensure that there is input and representation of patients on all research initiatives .
What are we trying to accomplish?
To produce a methodological framework for informing the design and conduct of future clinical trials in CRPS, based on the best available approaches for investigating the effectiveness of interventions for rare disorders.
What does it involve?
- sharing your expertise via attendance at one or two face-to-face meetings (to be held in Dublin, and a minimum of four online meetings; taking place over a 12 month period. Travel and food expenses covered and overnight accommodation arranged if necessary for in-person meeting);
- reviewing the drafted methodological framework document and providing feedback and/or content;
- reviewing successive drafts of an accompanying knowledge translation framework document.
Dr. Smart states “Another aim is to publish the methodological framework and accompanying research design algorithm in the International Association for the Study of Pain’s peer-reviewed academic journal ‘Pain’ in order to target a worldwide audience of pain researchers and clinicians. We will also share our project’s work with patients’ representative organisations”.